Well, since my last post, I did on my health, “Food allergies and autoimmune thyroid disease” I’ve gone through many health changes. I adopted the Paleo diet, avoided foods with lectins by following the Blood-type diet, I’ve cut down on sugar and fruit intake drastically to try to kill the Candida and avoided allergens.
Still something was wrong.
I reacted to food, but sometimes reacted to drinking water or exercising by bloating up like a pig. Finally, in October, 2011, I saw a parasitologist (Dr. Kevin Cahill) who performed a sigmoidoscopy and found out I had Trichuris trichura (whipworm) and Giardia lamblia. By the way, I got 2 stool tests in the 2 years prior to this and everything was negative – they don’t work! You need to have them scrape your intestinal wall or you’re wasting your time. I took all the meds and then got meds for Candida because it was out of control and…I felt better. My running improved (again) and I had more energy…but still something was wrong. The brain fog would come back occasionally, I had trouble focusing and my memory seemed to be getting worse.
Next I tried a hair mineral analysis in January, 2012 and was prescribed with severe adrenal fatigue. Big surprise. I was told to take a ridiculously large amount of vitamins and did for 1 month but was turned off by the fact that the amounts seemed to be arbitrary. I tried enquiring from the guy who did the analysis about how each would benefit me and affect the others I was taking but got nothing. I did feel a little better but stopped taking them – I can’t do a treatment without understanding why I’m doing it.
After that, I was desperate to focus and do my work so in May, 2012 I got a prescription for Adderall and took it for a couple of weeks. It worked great but the withdrawal from it was wretched. So I started taking L-Tyrosine, DL-Phenylalanine and other amino acids to jack up my dopamine and serotonin without becoming a drug addict. It worked a little. After reading books on ADHD and Asperger’s which I probably have some traits of each (though not full blown), I optimized my amino acid intake and started taking zinc and B6 which people with these afflictions often are lacking.
Something changed. First, I felt crappy – no appetite, headache, really moody – then I started to emerge from this fear and anxiety cloud that has been plaguing me forever. And I started to remember my dreams, not just the nightmares, the good ones too! (B6 supposedly does that). I then read about Pyroluria, a genetic disorder that results in chronically low zinc and B6 and figured I should be tested. Without zinc and B6, it’s difficult to digest food properly, leading to chronic Candida, leading to leaky gut syndrome, leading to autoimmune reactions (thyroid, food allergies), all of which lead to vitamin deficiencies. Oh, and there are plenty of links between ADHD, Asperger’s, food allergies, Candida and Pyroluria. Start searching, you’ll see.
The only problem with taking zinc and B6 on my own was that I had no idea how much to take and in large doses both can be toxic to a normal person. So in June, 2012, I ordered a pyroluria urine test through the mail from Bio Center Labs. They told me not to take supplements for 3 days then do the test. I did. It came out negative (kryptopyrroles = 3). Now what?
I was taking a cross-country motorcycle trip in August, 2012 so I decided to pass through Chicago and stop at Mensah Medical to get a full Orthomolecular workup. That is, redo the pyroluria test, get my serum copper, zinc plasma, blood histamine and ceruloplasma levels checked and talk to some doctors who might have a clue. This time I fasted from vitamins for more than 3 weeks to totally clear my system. Results were as follows: positive for pyroluria (kryptopyrroles = 14.75), blood histamine was low, serum zinc was low and copper was normal. I’m a slow oxidizer according to the hair mineral analysis –maybe that’s why it took so long for all my supplements to get out of my system. All my values were borderline abnormal (nothing too extreme), but they still help explain my symptoms and why zinc and B6 seemed to help.
So, I started a strict, twice daily vitamin regimen on September 10th 2012 which includes: B1, B2, P5P, B6, Niacinamide, Biotin, C, D, E, Folic acid, Evening Primrose Oil, Chromium Polynicotinate and Selenomethionine. I’m dopamine and GABA deficient so take GABA and L-tyrosine occasional to calm my ass down and focus.
Everything was going great for 5 days, then it was downhill. Anxiety increased, stopped recalling my dreams, I slowly withdrew from people (again), got headaches and periods of brain fog. All I could think was…what the fuck??? So what did I do, after 3 weeks of hell and getting progressively worse I did what any red-blooded American woman would do…I made brownies. Healthy ones – Dark chocolate, hazelnut flour, Jack Daniel’s, applesauce, etc. I felt much better….emotionally anyway. As I was working, still on my chocolate high, I got a strong cramping feeling in my bowels. I kept checking my belly, expecting to see a scene from “Alien” but nothing happened. I got the distinct feeling that I was not the only one enjoying my delicious brownies.
Soooo, last Thursday (October 11, 2012) I went BACK to the Dr. Cahill (parasite dude) and got another sigmoidoscopy. Turns out I now have Entamoeba histolytica, (a nasty amoeba) which I probably got from drinking bad water in Manitoba (it was one sip by accident…what are you gonna do?). I actually did an over the counter parasite cleanse (ReNew Life Paragone) when I returned from the motorcycle trip because of that sip of water, but as you can see….IT DIDN’T WORK. The only sure way to get rid of these bastards is to get your ass probed and then get medication – sorry folks!
I’m halfway through the Doxycycline and Paromomycin – 5th day – and am just starting to feel better. The intense anxiety is starting to wane and I am getting more work done. On a more positive note, I always suspected that my hair was thinning from the thyroid issues, but now I’m sure – because it’s growing back! Just around my hairline, my hair is thicker with new growth (1-2” hairs everywhere). Pretty cool! I have not had my thyroid antibody levels rechecked but this is very encouraging. Now, I wait to see if I return to feeling good like I did for those 5 days from the vitamins and minerals once the parasites are expelled.
I’m not sure when this ends, but I think I’m still making progress. If anyone has any comments, suggestions or explanations that might help me understand this further, I would love to hear them.